Category Archives: Herx

All The Things Left Unsaid…

This post will be different from the others I have written. It’s not just an update this time. It’s also a reflection and in a way, an apology. It’s been 2 years and almost 2 weeks since I arrived home … Continue reading

Posted in alone, Antibiotics, Anxiety, Babesia, Babesiosis, bartonella, being ok, Blessed, chronic illness, chronic pain, Coinfections, Death, depression, disappointed, dreams come true, Dying, eat well to be well, Educate, emotional, emotions, faking being ok, Fighter, fighting back, finding your way, food, food matters, getting better, go your own way, God, growing, growing stronger, healing, healing yourself, Help, helping yourself, Herx, herxing, highs and lows, holistic, homeopathic, hope, I am the fire, I will get better!, I will win, illness, Immune problems, Immune system, Its not your fault, Journey, Klinik St. Georg, LBC, letting go, LLMD, loneliness, Love, Lyme, lyme disease, lyme's disease, Medical, Medication Overload, Meditation, Misery, money, money matters, Mycoplasma, obsessive compulsive disorder, OCD, oral medication, oral meds, Pacing yourself, paleo, paleolithic, poisonpeople, pretending, psychic, psychic abilities, Real People, reflection, religion, right brain, scared, sick, sick individual, spiritual, Spiritual, spiritual awakening, Spiritualty, St Georg Klinik, St. Georg Klinik, staying sane, steps, Support groups, Survival, TBD, TBDs, Team Lymestorm, Ten Millions Voices, thankful, tickborne, tickborne diseases, ticks, Treatment, True love, trying new stuff, Uncategorized, unconventional, yoga | Leave a comment

Babesia Blues

I’ve been down in a dark hole for weeks now.  I just finished four months of Babesia treatment.  Four long, rough months.  While I haven’t been physically herxing the mental herxing has been nearly unbearable.  I’ve been all over the … Continue reading

Posted in alone, Antibiotics, Anxiety, Babesia, Babesiosis, bartonella, begging for help, chronic illness, chronic pain, Coinfections, Depraved, depression, desperate, desperate times, disappointed, Disheartened, Dying, emotional, emotions, Exhausted, Exhaustion, faking being ok, finances, Freaks, getting worse, Hell, Help, Herx, herxing, highs and lows, I will get better!, I will win, illness, Immune problems, Immune system, Its not your fault, Journey, LBC, Life is unfair, LLMD, loneliness, Lyme, lyme disease, lyme's disease, Medical, Medication Overload, Mycoplasma, No Stamina, obsessive compulsive disorder, OCD, oral medication, oral meds, pretending, reflection, sick, sick individual, Sleep Deprivation, spoon theory, spoons, Support groups, Support\, TBD, TBDs, Team Lymestorm, the spoon theory, tickborne, tickborne diseases, ticks, Treatment, Uncategorized | 2 Comments

Shakes and Emotions

I finished dosing Friday and it took me longer to recover than usual. I missed most of a beautiful weekend because my body would not cooperate.  My fatigue was dictating my life again.  I wanted to stay awake and take … Continue reading

Posted in alone, Antibiotics, Anxiety, Babesia, Babesiosis, bartonella, being ok, chronic illness, chronic pain, Coinfections, Congress, Death, depression, desperate, desperate times, disappointed, Disheartened, Educate, emotional, emotions, Exhausted, Exhaustion, faking, faking being ok, Fighter, fighting back, Freaks, getting better, getting worse, growing, Hell, Help, Herx, I am the fire, I will get better!, I will win, Life is unfair, loneliness, Love, Lyme, lyme disease, lyme's disease, Medical, Medication Overload, Misery, Mycoplasma, No Stamina, oral medication, pretending, rain, rainstorms, reflection, sick, sick individual, spoon theory, spoons, staying sane, Support\, Survival, TBD, TBDs, Team Lymestorm, Ten Millions Voices, tickborne, tickborne diseases, ticks, Uncategorized, What to expect | Leave a comment

Phoenix Rising

The last several months I haven’t been myself.  Too tired, too depressed, too suicidal to do anything. My days were taken minute by minute in a battle to survive the damage that my brain and body have endured. I found … Continue reading

Posted in alone, Amen, Babesia, Babesiosis, bartonella, being ok, Being prepared, Blessed, chronic illness, chronic pain, Coinfections, Death, Depraved, depression, desperate times, disappointed, Disheartened, Dying, emotional, emotions, Exhausted, Exhaustion, faking, faking being ok, Fighter, fighting back, finding your way, Freaks, friends, getting better, getting worse, go your own way, growing stronger, healing, healing yourself, Hell, Help, Herx, herxing, hope, I am the fire, I will get better!, I will win, illness, Immune problems, Its not your fault, Journey, LBC, let go and let god, Life is unfair, LLMD, loneliness, Lyme, lyme disease, lyme's disease, Medical, Medication Overload, Misery, Mycoplasma, No Stamina, oral medication, oral meds, Pacing yourself, poisonpeople, pretending, rain, Real People, reflection, sick, sick individual, Spiritual, Spiritualty, spoon theory, spoons, staying sane, suicidal thoughts, Suicide, Support groups, Survival, TBD, TBDs, Team Lymestorm, thankful, the spoon theory, tickborne, Uncategorized | 2 Comments

Surviving the Setbacks

I have been too tired, too exhausted to post anything for such a long time.  Treatment had not been going well and after talking to my doctor, I had an emergency appointment with my doctor at the beginning of last … Continue reading

Posted in Antibiotics, Anxiety, B12, Babesia, bartonella, chronic illness, chronic pain, Coinfections, Death, Depraved, depression, desperate, desperate times, disappointed, Disheartened, Dying, Educate, emotional, emotions, Exhausted, Exhaustion, Fighter, fighting back, finding your way, Freaks, getting better, getting worse, healing, Hell, Help, helping yourself, Herx, herxing, holistic, homeopathic, hope, I am the fire, I will get better!, I will win, illness, Immune problems, Immune system, Its not your fault, Journey, LBC, Life is unfair, LLMD, loneliness, Love, Low Cortisol, Lyme, lyme disease, Medical, Medication Overload, Misery, No Stamina, obsessive compulsive disorder, OCD, oral medication, oral meds, Pacing yourself, pretending, Purium, sick, sick individual, Sleep Deprivation, spiritual, Spiritual, Spiritualty, spoon theory, spoons, staying sane, steps, suicidal thoughts, Survival, TBD, TBDs, Team Lymestorm, thankful, the spoon theory, tickborne, tickborne diseases, ticks, Treatment, trying new stuff, Uncategorized, unconventional, What to expect, Zombie | 5 Comments

Support

Lyme disease (not to mention its coinfections) cannot be fought alone.  The old saying that “It takes a village to raise a child” is 100% applicable to tickborne illnesses.  Because in a way the road to health and remission requires … Continue reading

Posted in alone, Amen, Antibiotics, Babesia, Babesiosis, bartonella, chronic illness, chronic pain, Coinfections, Death, desperate, desperate times, Dying, emotional, emotions, Exhausted, Exhaustion, Fighter, fighting back, getting better, getting worse, healing, Hell, Herx, herxing, homeopathic, I am the fire, I will get better!, I will win, illness, Immune problems, Its not your fault, Journey, LBC, Life is unfair, LLMD, loneliness, Love, Lyme, lyme disease, Medical, Medication Overload, No Stamina, oral medication, oral meds, poisonpeople, pretending, Purium, sick, sick individual, staying sane, suicidal thoughts, Suicide, Survival, TBD, TBDs, Team Lymestorm, tickborne, tickborne diseases, ticks, Treatment, Uncategorized, Zombie | 2 Comments

What Is Wrong With Me?

What is wrong with me? That’s a question I get from just about everyone and one that I ask myself maybe too often.  I know my diseases.  I know them well.  After all, we’ve spent half of my life together … Continue reading

Posted in Antibiotics, Anxiety, Babesia, Babesiosis, bartonella, being ok, Being prepared, Blessed, chronic illness, chronic pain, Coinfections, Comfort, eat well to be well, emotional, emotions, Exhaustion, faking, faking being ok, Fighter, fighting back, finding your way, food, food matters, Freaks, getting better, go your own way, growing, growing stronger, healing, healing yourself, helping yourself, Herx, herxing, holistic, homeopathic, hope, I will get better!, I will win, illness, Immune problems, Immune system, Its not your fault, Journey, letting go, LLMD, Lyme, lyme disease, Medical, Medication Overload, Meditation, Mycoplasma, nature, obsessive compulsive disorder, OCD, oral medication, oral meds, Pacing yourself, pretending, psychic, psychic abilities, Purium, reflection, religion, right brain, sick, sick individual, spiritual, spoon theory, spoons, staying sane, steps, Support groups, Support\, Survival, TBD, TBDs, Team Lymestorm, Ten Millions Voices, thankful, the spoon theory, tickborne, tickborne diseases, ticks, Treatment, Uncategorized, unconventional, What to expect, yoga | Tagged , , , | 2 Comments

Dreams Come True – Halestorm

I have 3 major dreams in life right now…to meet be in remission, to be a wife/mother and to meet the band Halestorm. (Of course I still wish and pray for a cure, but since Lyme is not even accepted … Continue reading

Posted in Amen, Babesia, Babesiosis, bartonella, being ok, Blessed, chronic illness, chronic pain, Coinfections, Comfort, dreams come true, emotional, emotions, Fighter, fighting back, Freaks, friends, getting better, go your own way, growing, growing stronger, Halestorm, healing, healing yourself, healng yourself, helping yourself, Herx, herxing, I am the fire, I will get better!, I will win, illness, Immune problems, Immune system, Its not your fault, Journey, LBC, let go and let god, Love, Lyme, lyme disease, Lzzy Hale, lzzyhale, Medical, reflection, spiritual, Spiritualty, spoon theory, spoons, TBD, TBDs, Team Lymestorm, Ten Millions Voices, thankful, the spoon theory, tickborne, tickborne diseases, ticks, Treatment, trying new stuff, Uncategorized, yoga | 1 Comment

Babesia – Its Back

Its late for me to be writing.  I am swimming in the thoughts that have been brewing all day.  Even though my brain is ALWAYS worse at night than first thing in the morning, I’m getting it out (my iPad … Continue reading

Posted in alone, Antibiotics, Anxiety, Babesia, Babesiosis, bartonella, being ok, Being prepared, Blessed, caveman diet, chronic illness, chronic pain, Coinfections, Comfort, Congress, disappointed, Educate, emotional, emotions, Exhaustion, faking, faking being ok, Fighter, fighting back, food, food matters, Freaks, friends, germs, getting better, getting worse, go your own way, growing stronger, Halestorm, healng yourself, Hell, Help, helping yourself, Herx, herxing, homeopathic, hope, I will get better!, I will win, illness, Immune problems, Immune system, Its not your fault, Journey, LBC, let go and let god, letting go, Life is unfair, LLMD, loneliness, Love, Lyme, lyme disease, lyme's disease, Lzzy Hale, lzzyhale, Medical, Medication Overload, Meditation, Misery, Mycoplasma, nature, No Stamina, OCD, oral medication, oral meds, Pacing yourself, paleo, paleolithic, reflection, religion, right brain, sick, sick individual, spiritual, Spiritualty, steps, suicidal thoughts, Suicide, supplies, supply list, Support\, Survival, TBD, TBDs, Team Lymestorm, thankful, tickborne, tickborne diseases, ticks, Treatment, True love, Under Our Skin, what life's about, withdrawl, Zombie | 1 Comment

Comfortable

D.C. days are always long, stressful and utterly exhausting.  It’s not that I mind the appointment, well the test dosing is usually not fun, but I’m done test dosing new IV meds, but the combination of the appointment and the … Continue reading

Posted in Comfort, Emergence, Exhaustion, fighting back, germs, Herx, I will get better!, Immune problems, Immune system, IV infusion, Journey, LBC, LLMD, Lyme, lyme disease, No Stamina, Pacing yourself, spiritual, steps, TBD, ticks, Uncategorized, Under Our Skin, Zombie | Tagged | Leave a comment