Author Archives: lymestorm

The Way

Posted on August 25, 2014 by lymestorm

I can finally see small improvements in my treatment. Most are small by other standards, but just having more “good” days is amazing. Dosing is becoming easier (though I don’t think it could have gotten much worse after last month.) … Continue reading →

Posted in Anxiety, Babesia, Babesiosis, chronic pain, fighting back, getting better, growing stronger, hope, I will get better!, Life is unfair, Lyme, lyme disease, religion, spiritual, Uncategorized | Tagged | Leave a comment

Life Cycle

Posted on August 11, 2014 by lymestorm

I’ve come to a rather dark place in my mind. I’m not sure how much of it is treatment or this disease or just my brain. It amazes me how many years I spent getting to know myself and finding … Continue reading →

Posted in hope, illness, Lyme, lyme disease, nature, sick, spiritual, suicidal thoughts, Uncategorized | Tagged | Leave a comment

Babesia, Oh How I Loathe Thee

Posted on July 27, 2014 by lymestorm

I know that I should be writing more often to document all that is going on, but I’ve just been too sick and my brain has once again turned to mush. I thought I was lucky. After finishing my first … Continue reading →

Posted in Antibiotics, Babesia, Babesiosis, chronic pain, fighting back, getting better, growing stronger, healing, I will get better!, IV infusion, Life is unfair, Lyme, lyme disease, ticks, Uncategorized | Tagged | Leave a comment

Poison + Pain – Pride = PROUD!

Posted on July 16, 2014 by lymestorm

I have been learning a new level, type and duration of pain. I’ve always had a high level of pain tolerance. When I had my thoracic outlet surgery (aka my top ribs removed on both sides) the doctor and the … Continue reading →

Posted in fighting back, getting better, growing stronger, healing, hope, IV infusion, Lyme, poisonpeople, Uncategorized | Tagged | 147 Comments

First Week Of Treatment

Posted on June 29, 2014 by lymestorm

So I know I blogged earlier in the week about getting my port in and how Monday and Tuesday went but this week was filled with a lot of excitement and fear. Monday and Tuesday I was having pain in … Continue reading →

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Port Implanted – Antibiotics Started

Posted on June 25, 2014 by lymestorm

Monday was the big day, I got my powerline (central line port) implanted and got my 1st dose of antibiotics.  It was one of the longest days of my life.  We were supposed to leave the house at 430am but … Continue reading →

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Treatment Date & Details & Ramblings

Posted on June 4, 2014 by lymestorm

Well I got the official word yesterday that on June 23rd I get my Power Line (central line) put in and start my antibiotic treatment. Its going to be a long day. I have to be in DC (a 1.5-2 … Continue reading →

Posted in Antibiotics, I will get better!, Life is unfair, Lyme, lyme's disease, Uncategorized | Tagged | Leave a comment

Anxiety and OCD in overdrive

Posted on May 27, 2014 by lymestorm

I haven’t posted in a while because my anxiety and OCD have pretty much taken over my life. I’m exhausted beyond belief yet I just can’t stop. My pain is better controlled (better but by no means relief) by upping … Continue reading →

Posted in Anxiety, Lyme, OCD, Uncategorized | Tagged | 1 Comment

What the brain SPECT?!

Posted on April 29, 2014 by lymestorm

Went for my brain SPECT scan yesterday. Luckily I had my friend Bryan who was available to drive me because I’d have never been able to make it down and back myself. We had to go to Reston, VA (about … Continue reading →

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Cure Unknown:Inside the Lyme Epidemic

Posted on April 26, 2014 by lymestorm

“Cure Unknown – Inside the Lyme Epidemic by Pamela Weintraubn is a definite read for anyone learning about Lyme. Make sure you have someone to talk to after…you’ll be ready to talk their ear off about all you “new” facts … Continue reading →

Posted in lyme's disease, pamela weintraub, Uncategorized | Leave a comment